Down Syndrome Awareness

Up until March 29, 2009 the words Down Syndrome had absolutley no meaning to me. Our daughter MaKaylee was born blue and her temperture was not stable 9 hours later we were told our daughter would need to be transfered to a to a facility with a NICU. Later finding out that sweet angel had a heart defect(complete AV Canal). After finding this out we were still unsure what had to be done to repair this defect or if it could even be fixed. We finally met with MaKaylee's cardioligost Dr. Womack. He did a very great job at calming our fears until he said a ??% of babies born with heart defects have Down Syndrome my heart stopped... the thoughts going through my mind where "why me I know nothing" and "how could this happen to me I can't handle this" a 5 day stay in the NICU and we were sent home. Still wondering and in complete shock while falling in love with her sweet face and her pudgy body more each day. Almost two years later a heart surgery, a billion doctor visits, therapy and lots of hard work. I know today more than I did before March 29, 09....I know that the joy that comes from these sweet sprits is so incredible words cannot describe. The things she has taught our family may be small and simple things but, to us this it what matters most in life. We Love you MaKaylee!!